With a significant increase in the care package nominations received
since our formation in 2010, the Sisters by
Heart Board developed the concept of “Linked by Heart” in an effort
to provide more assistance for the
Hypoplastic Left Heart Syndrome (HLHS) community.
Linked by Heart
complements our mission of spreading HOPE and support to families
walking the path from HLHS diagnosis through surgical interventions and
Linked by Heart is a collaborative effort between Sisters By Heart and additional HLHS mothers known as “Regional Coordinators.” The Regional Coordinators are moms from across the nation who’ve walked in your shoes and want to help you locate other families in your same situation via Regional Facebook Groups and a searchable database for networking.
With the launch of Linked by Heart, families across the HLHS spectrum can connect, from those prenatally diagnosed to “angel moms,” and everyone inbetween. Any family affected by HLHS is invited to register with the Linked by Heart Network and/or join our Regional Facebook groups.
Please take a moment to watch the video below to learn more about Linked by Heart.
We look forward to sharing our experiences with you and helping you find support!